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Please find below research projects that The Trust has been involved with. We started by funding a research post in '97 for Dr Alison Giles who was involved in developing the first Minimum Dataset for Oral Cancer. She then did some of of the initial work on Study of Squamous Cell Carcinoma of the Oral Cavity in patients Aged 45 Years and Under. This post was taken over by Carrie Llewellyn in '99 which we continued to fund at King's College, London, until all the research papers were completed.

At present you can download a copy of our latest project below. You can view an abstract of the other research papers by clicking on the link, then oral oncology. There are some copyright issues that we are currently trying to resolve and as soon as possible we hope to be able to allow you to download copies of all the papers.

This should then form a comprehensive resource of up-to-date research on oral cancer in the younger patient.

BMJ Learning Module: Mouth Cancer: recognising it and referring early

BMJ module 'Mouth cancer: recognising it and referring early'

This module, initiated and supported by The Trust, had over 11,139 users accessing the site to date (November 2012).

The site, which is examinable for CPD points, was principally designed for GPs. Positive responses include "very useful and thought provoking", "informative and helpful", "very well prepared for learning", "thanks to Ben's Trust for this".

The module has been fully updated as of Monday 29th September 2014. For more information go to the News and Events page.

Thanks from The Trust to Dr Jacqueline Batson of BMJ Learning.

BMJ module 'Mouth cancer: recognising it and referring early'

Instructions below on how a new user can access the module:

  1. Go to
  2. Enter your details in the 'create new account' box on the right hand side of the page
  3. Follow the additional steps to register
  4. Once registered, users can search for 'mouth cancer' in the search box and the module will appear. Otherwise click on the module link once logged in. Further details on logging in (PDF link).

The Experiences of Younger Oral Cancer Patients

Our latest research project entitled, ‘The Experiences of Younger Oral Cancer Patients in Scotland: From Self-diagnosis to Treatment’, which is now complete, was carried out in conjunction with NHS Greater Glasgow and Clyde, University of Bath and King’s College, London. This was initiated and funded by The Trust.

Download a PDF of the research report.

This project is now Scotland wide and patients are currently being recruited. Details, contact Liz Grant, Project Manager, at

A paper based on the findings of the original pilot study was written by Professor Saman Warnakulasuriya entitled The experiences of young oral cancer patients in Scotland: symptom recognition and delays in seeking professional help. Published British Dental Journal (BDJ) Volume 208 no 10 May 22nd 2010.

You may also be interested in other publications and collaborations by Saman Warnakulasuriya

BDA occasional paper, Early Detection and Prevention of Oral Cancer. A Management Strategy for Dental Practice. Editors, Paul Speight, Saman Warnakulasuriya and Graham Ogden. October 2010.

A collaboration under a Leonardo da Vinci partnership at Early Detection and Prevention of Oral Cancer. Raising Awareness of Dental Professionals through Lifelong Learning. Greek Anti Cancer Institute, King's College: London, University of Naples.

Causes of Oral Cancer - an appraisal of controversies. BDJ 207, 471-475 28th Nov 2009.

An analysis of risk factors for oral cancer in young people: a case-control study

Carrie D. Llewellyn, Karen Linklater, Janine Bell, Newell W. Johnson and Saman Warnakulasuriya


Risk factors for squamous cell carcinoma of the oral cavity in young people — a comprehensive literature review

C. D. Llewellyn, N. W. Johnson and K. A. A. S. Warnakulasuriya


Squamous cell carcinoma of the oral cavity in patients aged 45 years and under: a descriptive analysis of 116 cases diagnosed in the South East of England from 1990 to 1997

C. D. Llewellyn, K. Linklater, J. Bell, N. W. Johnson and K. A. A. S. Warnakulasuriya


Factors associated with delay in presentation among younger patients with oral cancer

Carrie D. Llewellyn BSc, MSc, Newell W. Johnson BDSc, MDSc, PhD and Saman Warnakulasuriya FDS, PhD


Risk factors for oral cancer in newly diagnosed patients aged 45 years and younger: a case–control study in Southern England

C. D. Llewellyn, N. W. Johnson, K. A. A. S. Warnakulasuriya

doi: 10.1111/j.1600-0714.2004.00222.x